Publications
TBI-CareQOL - Development
Main Overview Paper
Carlozzi, N. E., Kallen, M. A., Hanks, R., Hahn, E. A., Brickell, T. A., Lange, R. T., French, L. M., Kratz, A. L., Tulsky, D. S., Cella, D., Miner, J. A., Ianni, P. A., & Sander, A. M. (2019). The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury. Archives of physical medicine and rehabilitation, 100(4S), S1–S12. https://doi.org/10.1016/j.apmr.2018.08.175
Qualitative Analysis
Carlozzi, N.E., Kratz, A.L., Sander, A.M., Chiaravalloti, N.D., Brickell, T.A., Lange, R.T., .Hahn, E.A., Austin, A., Miner, J.A., Tulsky, D.S. (2015). Health-related quality of life in caregivers of individuals with traumatic brain injury: development of a conceptual model. Arch Phys Med Rehabil, 96(1), 105-113. PMID: 25239281. PMC4276526. doi:10.1016/j.apmr.2014.08.021
Carlozzi, N.E., Brickell, T.A., French, L.M., Sander, A., Kratz, A.L., Tulsky, D.S., .Chiaravalloti, N.D., Hahn, E.A., Kallen, M., Austin, A.M., Miner, J.A., Lange, R.T. (2016). Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury. J Rehabil Res Dev, 53(6), 669-680. PMID: 27997672. PMC5180206. doi:10.1682/jrrd.2015.07.0136
Carlozzi, N.E., Lange, R.T., French, L.M., Sander, A.M., Freedman, J., Brickell, T.A. (2018). A latent content analysis of barriers and supports to healthcare: Perspectives from caregivers of service members with military traumatic brain injury. Journal of Head Trauma and Rehabilitation, 33(5), 342-353. PMID: 29385014. PMC6172008. doi: 10.1097/HTR.0000000000000373
Measure Development
Carlozzi, N.E., Kallen, M.A., Hanks, R., Kratz, A.L., Hahn, E. A., Brickell, T. A., Lange, R.T., French, L.M., Ianni, P.A., Miner, J.A., Sander, A,M. (2019). The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank. Arch Phys Med Rehabil, 100(4s), S43-s51. PMID: 30075146. PMC6422745. doi:10.1016/j.apmr.2018.06.025
Carlozzi, N.E., Kallen, M.A., Ianni, P.A., Hahn, E.A., French, L.M., Lange, R.T., Brickell, T.A., Hanks, R., Sander, A.M. (2019). The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI: TBI-CareQOL Caregiver Strain. Arch Phys Med Rehabil, 100(4s), S13-s21. PMID: 29966647. PMC6389439. doi:10.1016/j.apmr.2018.05.033
Carlozzi, N.E., Kallen, M.A., Ianni, P.A., Sander, A.M., Hahn, E.A., Lange, R.T., Brickell, T.A., French, L.M., Miner, J.A., Hanks, R. (2019). The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury. Arch Phys Med Rehabil, 100(4s), S31-s42. PMID: 29958904. PMC6309950. doi:10.1016/j.apmr.2018.05.026
Carlozzi, N.E., Kallen, M.A., Sander, A.M., Brickell, T.A., Lange, R.T., French, L.M., Ianni, P.A., Miner, J.A., Hanks, R. (2019). The Development of a New Computer Adaptive Test to Evaluate Anxiety in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Caregiver-Specific Anxiety. Arch Phys Med Rehabil, 100(4s), S22-s30. PMID: 29958902. PMC6309947. doi:10.1016/j.apmr.2018.05.02
Carlozzi, N.E., Kallen, M.A., Brickell, T.A., Lange, R.T., Boileau, N.R., Tulsky, D., Hanks, R.A., Massengale, J.P., Nakase-Richardson, R., Ianni, P.A., Miner, J.A., French, L.M., Sander, A.M. (2020). Measuring emotional suppression in caregivers of adults with traumatic brain injury. Rehabil Psychol, 65(4), 455-470. PMID: 31580109. PMC7117989. doi: 10.1037/rep0000291
Carlozzi, N.E., Lange, R.T., Boileau, N.R., Kallen, M.A., Sander, A.M., Hanks, R.A., Nakase-Richardson, R., Tulsky, D.S., Massengale, J.P., French, L.M., Brickell, T.A. (2020). TBI-CareQOL family disruption: Family disruption in caregivers of persons with TBI. Rehabil Psychol, 65(4), 390-400. PMID: 31841019. PMC7295660. doi:10.1037/rep0000297
Carlozzi, N.E., Lange, R.T., French, L.M., Kallen, M.A., Boileau, N.R., Hanks, R.A., Nakase-Richardson, R., Massengale, J.P., Sander, A.M., Hahn, E.A., Miner, J.A., Brickell, T.A. (2020). TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury. Rehab Psych, 65(4), 360-376. PMID: 31916805. PMC7343601. doi:10.1037/rep0000305
Carlozzi, N.E., Lange, R.T., Kallen, M.A., Boileau, N.R., Sander, A.M., Massengale, J.P., Nakase-Richardson, R., Tulsky, D.S., French, L.M., Hahn, E.A., Ianni, P.A., Miner, J.A., Hanks, R., Brickell, T.A. (2020). Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL caregiver vigilance. Rehabil Psychol, 65(4) 418-431. PMID: 31971432. PMC7375946. doi:10.1037/rep0000302
Measure Validation
Carlozzi, N.E., Boileau, N.R., Kallen, M.A., Nakase-Richardson, R., Hahn, E. A., Tulsky, D. S., .Miner, J.A., Hanks, R.A., Massengale, J.P., Lange, R.T., Brickell, T.A., French, L.M., Ianni, P.A., Sander, A. M. (2019). Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL). Rehabil Psychol. PMID: 31829641.PMC7357718. doi:10.1037/rep0000295
Carlozzi, N.E., Lange, R.T., French, L.M., Sander, A.M., Ianni, P.A., Tulsky, D.S., .Miner, J.A., Kallen, M.A., Brickell, T.A. (2019). Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System. Arch Phys Med Rehabil, 100(4s), S85-s93. PMID: 29966648. PMC6311445. doi:10.1016/j.apmr.2018.05.034
Carlozzi, N.E., Hanks, R., Lange, R.T., Brickell, T.A., Ianni, P.A., Miner, J.A., French, L.M., Kallen, M.A., & Sander, A.M. (2019). Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS mental health measures. Arch Phys Med Rehabil, 100(4S), S94-S101. PMID: 29932885. PMC6301134. doi: 10.1016/j.apmr.2018.05.021
Carlozzi, N.E., Ianni, P.A., Lange, R.T., Brickell, T.A., Kallen, M.A., Hahn, E.A., French, L.M., Cella, D., Miner, J.A., & Tulsky, D.S. (2019). Understanding health-related quality of life among caregivers of civilians and service members/veterans with Traumatic Brain Injury: Establishing the reliability and validity of PROMIS social health measures. Arch Phys Med Rehabil, 100(4S), S110-S118. PMID: 30075148. PMC6355379. doi: 10.1016/j.apmr.2018.06.026
Carlozzi, N.E., Ianni, P.A., Tulsky, D.S., Brickell, T.A., Lange, R.T., French, L.M., Cella, D., Kallen, M.A., Miner, J.A., & Kratz, A.L. (2019). Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS Fatigue and Sleep Disturbance Item Banks. Arch Phys Med Rehabil, 100(4S), S102-S109. PMID: 29932884. PMC6309292. doi: 10.1016/j.apmr.2018.05.020
Raad, J.H., Tulsky, D.S., Lange, R.T., Brickell, T.A., Sander, A.M., Hanks, R.A., French, L., Miner, J.A., Kisala, P.A., Carlozzi, N.E. (2020). Establishing the factor structure of a health-related quality of life measurement system for caregivers of persons living with traumatic brain injury. Arch Phys Med Rehabil 101(7): 1220-1232, 2020. PMID: 32315649. PMC7311311. doi: 10.1016/j.apmr.2020.03.014
TBI-CareQOL - Other Publications
Kratz, A.L, Sander, A., Brickell, T., Lange, R, Carlozzi, N.E. (2017). Traumatic Brain Injury Caregivers: A Qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil, 8, 1-22. PMID: 26052805. PMC4673040. doi:10.1080/09602011.2015.1051056
Hahn, E.A., Ianni, P.A., Hanks, R.A., Miner, J.A., Freedman, J., Carlozzi, N.E. (2019). Survey response burden in caregivers of civilians and service members/veterans with traumatic brain injury. Patient Relat Outcome Meas, 10, 59-66. PMID: 30881163. PMC6398416. doi:10.2147/prom.s171712
Keatley, E., Hanks, R., Sander, A.M., Kratz, A.L., Tulsky, D.S., Ianni, P., Miner, J.A., Carlozzi, N.E. (2019). Group differences among caregivers of civilians and service members or veterans with traumatic brain injury. Arch Phys Med Rehabil, 100(4s), S52-s57. PMID: 30537488. PMC6528672. doi:10.1016/j.apmr.2018.11.009
Sander, A.M., Hanks, R.A., Kratz, A.L., Ianni, P.A., Hahn, E.A., Tulsky, D.S., & Carlozzi, N.E. (2019). Sociocultural factors influencing caregiver appraisals following traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 100(4S), S58-S64. PMID: 30365926. PMC6435379. doi:10.1016/j.apmr.2018.08.193
Raad, J.H., Tulsky, D., Lange, R.T., Brickell, T.A., Sander, A.M., Hanks, R.A., French, L., Miner, J.A., Kisala, P.A., Carlozzi, N.E. (2020). Establishing the factor structure of a health-related quality of life measurement system for caregivers of persons living with traumatic brain injury. Arch Phys Med Rehabil. 101(7), 1220-1232. PMID: 32315649. PMC7311311. doi:10.1016/j.apmr.2020.03.014
Sander, A.M., Boileau, N.R., Hanks, R.A., Tulsky, D.S., Carlozzi, N.E. (2020). Emotional suppression and hypervigilance in military caregivers: Relationship to negative and positive affect. J Head Trauma Rehabil, 35(1), e10-e20. PMID:31365438. PMC7643713. doi:10.1097/htr.0000000000000507
Hanks, R.A., Boileau, N.R., Norman, A.L., Nakase-Richardson, R., Mariouw, K.H., Carlozzi, N.E. (2020). Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI). Rehabil Psychol, 65(4), 347-359. PMID: 31916806. PMC7643714. doi:10.1037/rep0000304
Kratz, A.L., Boileau, N.R., Sander, A.M., Nakase-Richardson, R., Hanks, R.A., Massengale, J.P., Miner, J.A., Carlozzi, N.E. (2020). Do emotional distress and functional problems in persons with traumatic brain injury contribute to perceived sleep-related impairment in caregivers? Rehabil Psychol. (online ahead of print). PMID: 32406737. PMC7665992. doi: 10.1037/rep0000327
Carlozzi, N.E., Boileau, N.R., Hanks, R.A., Sander, A.M., Nakase-Richardson, R., Massengale, J.P. (2020). Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors. Rehabil Psychol. (online ahead of print). PMID: 32772535. PMC7873168. doi: 10.1037/rep0000334
Hahn, E.A., Boileau, N.R., Hanks, R.A., Sander, A.M., Miner, J.A., Carlozzi, N.E. (2020). Health literacy, health outcomes, and the caregiver role in traumatic brain injury. Rehabil Psychol. (online ahead of print). PMID: 32463261. PMC7704789. doi: 10.1037/rep0000330
Brickell, T.A., Cotner, B.A., French, L.M., Carlozzi, N.E., O'Connor, D.R., Nakase-Richardson, R., Lange, R.T. (2020). Severity of military traumatic brain injury influences caregiver health-related quality of life. Rehabil Psychol. (online ahead of print) PMID: 31971431. PMC7375900. doi:10.1037/rep0000306