Presenting Results

Use the Correct Measure Name

    • Report the official measure name. The measure name includes the following components:

      • Measure type (i.e., short form, computer adaptive test (CAT))

          • Note that in some data collection systems, measures are labeled as “item banks.” If the item bank was administered as a computer adaptive test, please refer to the measure as a CAT.

      • Version number (e.g., v2.0)

      • For short forms, the number of items and letter designation if it exists (e.g. Caregiver Strain 6a)

    • Examples:

      • Neuro-QoL Caregiver Item Bank v2.0 – TBI-CareQOL Feeling Trapped

      • Neuro- QoL Caregiver v2.0 – TBI-CareQOL Feeling Trapped – Short Form 6a

Use T-Scores

    • All TBI-CareQOL scores should be presented as T-scores. The T-score is the standardized score with a mean of 50 and standard deviation of 10. Having T-scores in publications facilitates comparisons between studies.

    • Percentiles can be included as additional but not replacement information.

    • Higher scores indicate more of the concept being measured.

    • There are multiple ways to calculate TBI-CareQOL T-scores (e.g., manual look-up tables, automatic scoring in a data collection platform). Learn more about your options here.

Cite the Measure

Please include a citation for any TBI-CareQOL measures used in publications. If using a short form, please cite the publication describing the development of the full item bank. You can find the TBI-CareQOL publications here.

Describe Modifications

The text and responses of TBI-CareQOL items cannot be altered in any way and still be considered an TBI-CareQOL item. Users are welcome to modify the items, but cannot refer to these modified items as TBI-CareQOL. There are no data to determine whether or not a modified version would have the same psychometric properties as the original TBI-CareQOL item. If you do choose to modify items, please clearly specify how the items were modified in any publications or other publicly disseminated products. Any changes to the syntax, including time frame, item text, and response options should be clearly described.

Ask for Permission to Reprint a Measure

If you would like to reprint an TBI-CareQOL measure in a publication, please email a request to for written permission.