Introduction to TBI-CareQOL
TBI-CareQOL is a set of self-report measures within the Neuro-QoL™ measurement system that assesses the health-related quality of life (HRQOL) of caregivers of adults with traumatic brain injury (TBI). The TBI-CareQOL measures were developed through a collaborative, multi-site NIH-sponsored research project to construct a psychometrically-sound and clinically-relevant health-related quality of life measurement tool for caregivers of individuals with TBI. TBI-CareQOL is comprised of item banks and scales that evaluate symptoms and concerns important to caregivers. The TBI-CareQOL measures are intended for use in both clinical trials and clinical practice.
Why Use TBI-CareQOL?
Designed to be brief, specific, and sensitive to caregivers of individuals with TBI
Developed to assess new domains not currently covered by existing measures for caregivers
Created using input from civilian caregivers, military caregivers, researchers and clinicians
Available in short forms or computer adaptive test (CATs) and easily integrated into diverse data collection tools
Who uses TBI-CareQOL?
Anyone interested in measuring the self-reported health and well-being of caregivers of individuals with TBI, including health care providers and researchers.
The TBI-CareQOL measurement system consists of measures that cover 8 caregiver-specific domains, as well as 17 generic domains through the Neuro-QoL and PROMIS systems.