Introduction to TBI-CareQOL

TBI-CareQOL is a set of self-report measures within the Neuro-QoL™ measurement system that assesses the health-related quality of life (HRQOL) of caregivers of adults with traumatic brain injury (TBI). The TBI-CareQOL measures were developed through a collaborative, multi-site NIH-sponsored research project to construct a psychometrically-sound and clinically-relevant health-related quality of life measurement tool for caregivers of individuals with TBI. TBI-CareQOL is comprised of item banks and scales that evaluate symptoms and concerns important to caregivers. The TBI-CareQOL measures are intended for use in both clinical trials and clinical practice.

Why Use TBI-CareQOL?

  • Designed to be brief, specific, and sensitive to caregivers of individuals with TBI

  • Developed to assess new domains not currently covered by existing measures for caregivers

  • Created using input from civilian caregivers, military caregivers, researchers and clinicians

  • Available in short forms or computer adaptive test (CATs) and easily integrated into diverse data collection tools

Who uses TBI-CareQOL?

Anyone interested in measuring the self-reported health and well-being of caregivers of individuals with TBI, including health care providers and researchers.


The TBI-CareQOL measurement system consists of measures that cover 8 caregiver-specific domains, as well as 17 generic domains through the Neuro-QoL and PROMIS systems.